Manual for Cystic Fibrosis Patients and their Parents
This Manual is designed to help Cystic Fibrosis patients and their parents to
have a better understanding of Cystic Fibrosis as a disease. It has been produced jointly by the
World Health Organization (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association
(ICF(M)A), in response to requests for a simple document which is suitable for families in all
countries who may have difficulty in attending a well-developed specialist CF clinic or obtaining
detailed information about the disease.
If you have any questions about any points mentioned in this booklet, please be sure to discuss these with your own doctor.
This Manual is not intended to replace the information your doctor will give you once you are informed that you or your child has CF but it will supplement and serve as a general guide to have at hand and to be consulted whenever you need it.