Cystic Fibrosis Worldwide has put considerable resources to work in India to develop a CF patient association. The Cystic Fibrosis South Asian Trust (CF-SAT) is now a legally established organization. CF-SAT has also been provided with a computer and miscellaneous office supplies funded by a grant from Chiron. The final step in capacity building for the CF-SAT is to provide financial support for the employment of a Health and Social Welfare specialist to act as the Director of CF-SAT and establish a permanent office in Delhi. The objective of the Director of CF-SAT will be to implement the CF-SAT strategic plan that was developed in cooperation with CFW in 2007. CFW will fund only 2 years of operational costs allowing CF-SAT to develop and resource funding to support actual projects detailed in the strategic plan. CFW will have the option to assist in individual projects as requested by CF-SAT utilizing our international network and resources. CFW will also include India in our Educational program planning regional conferences every 2 years. The main priority for CFW is to act only as a support group not to develop, implement or control individual projects. It is our goal to let Indians help India so there is progress and development long term.
Capacity Building for the CF-SAT
Aim of the Project: To Build capacity of CFW member, CF-SAT
Objective: To develop CF-SAT into an organization that continually expands its resources and programs creating a viable organization long term.
Long term objectives: To improve life expectancy and quality of life for South Asian CF Patients.