What is the outcome?
Outcomes are benefits to clients who utilize the clinic, free medication and information Centre being developed in the Republic of Georgia. The evaluation will also include effects on families, the Children’s Central Hospital and the communities where people with CF live.
 Outcomes should not be confused with program outputs or units of services, e.g. the number of clients who visit the clinic each month but instead focus on how the lives of those who do visit have changed. The managing medical staff operating the Georgian CF Centre will also benefit from an outcomes evaluation that will tease out and define program strengths and weaknesses.
In developing health care systems there is a need to build capacity for the management of chronic disease such as CF from both health care and patient/family perspectives to the needs of developing countries social and health care systems. Cystic Fibrosis is a genetic disease with a full range of chronic disease management components representing the demands on family, health care systems, governments, communities and international resources when implementing management models.
This program has two primary objectives. First the outcomes evaluation is to provide regular, systematic tracking of the extent to which program participants experience the benefits of changes intended. By successfully tracking the impact our program has on
the people with CF, CFW will communicate value and increase effectiveness for improving quantity and quality of life for people with CF globally.
The second primary objective is to develop healthcare infrastructure for the management of CF in the Republic of Georgia and to
disseminate the development plan to both other chronic diseases and other developing countries. The PhD student at the University
of Maastricht Department of Health and Education and Health Promotion will base her work on the evaluation of the Georgian
National CF Centre pilot project being conducted by CF Worldwide.
To achieve these objectives, the University of Maastricht and CFW have put together an evaluation team including members from the CF Association in the Republic of Georgia, CFW board members and Project Manager, University of Maastricht Faculty and a PhD student.
The PhD student is skilled in working in underprivileged countries and interested in developing further skills in program evaluation, capacity enhancement and models of chronic disease management.
The team will:
1. Evaluate the program process and outcomes of the Georgian Cystic Fibrosis Centre Pilot Project.
2. Develop a capacity building and evaluation framework/manual for use by Cystic Fibrosis Worldwide for the development and evaluation of cystic fibrosis management programs in developing countries.
3. Implement the capacity building and evaluation framework in two additional cystic fibrosis projects in Latin America and the Middle East.
4. Analyze the lessons learned from the Cystic Fibrosis Worldwide evaluation.
The evaluation capacity building program will begin
April 1, 2004 and is scheduled to be completed by April 1, 2008.
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