Education Program
“Educate parents, people living with cystic fibrosis and Medical, Health Professionals in the treatment of cystic fibrosis”
Cystic Fibrosis Worldwide is a provider of Cystic Fibrosis (CF) educational programs for practicing clinicians, allied health professionals and patients/families globally with a focus on developing countries. Currently Cystic Fibrosis Worldwide educates over 2000 clinicians, patients and family members annually through our network of live, interactive, online, and print educational activities. Our clinical experience is both broad and deep with expertise in inpatient and outpatient treatment of CF to include both well-established and emerging topics in addition to education tailored to primary care practitioners, specialists, allied health professionals and patient home therapy.
Cystic Fibrosis Worldwide Educational Program, an integral part of the Cystic Fibrosis Worldwide projects, sponsors conferences, online, and print activities as well as other innovative formats of distance education. As a result of these educational activities, Cystic Fibrosis Worldwide fosters the continuing professional development of CF health care providers and the spread of information among patients and family. The offerings are designed to promote the professional development of physicians and health care practitioners and influence their clinical practice behavior for the purpose of improving health outcomes for Cystic Fibrosis patients. Our educational programs are also aimed a families and patients improving daily home care and the development of patient organizations.
Regional Conferences and specialized workshops
CF is a multi-organ disease and children with CF need multidisciplinary team care in CF centre’s regularly. This multidisciplinary team should consist of a CF Nurse, Pediatric Pulmonologist, Pulmonologist, Gastroenterologist/Nutritionist, Nurse, Physiotherapist, Microbiologist and Psychologist/Social worker who have been trained in the specific needs of patient care. Daily home care that requires both parent and patient participation is also needed to ensure the patients experience a better quality of life and life expectancy. A corner stone to a program that addresses the needs of patients is education that creates multidisciplinary teams and carries that high quality care to the home and daily life of each patient.
March 4, 2009
CFW Pocket Guide to the management and treatment of cystic fibrosis
The CFW Resource Guide is an educational resource that is an overview of content of CFW Educational Conferences and Seminars. It is specially designed to meet the needs of developing countries and countries where there is little known about cystic fibrosis. Our main objective is to create a resource to encompass all the needs that surround supporting and managing cystic fibrosis effectively.
