June 8, 2011

CONTINUOUS IMPROVING QUALITY OF CF-CARE:
HOW PATIENTS AND CF-CENTRES CAN WORK TOGETHER
Hamburg, Germany

Welcome and introduction

Speakers: Dominique Bertrand and Martin Stern
Download/Play: English
Duration: 3 min 4 sec

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How state-of-the art therapy can be made available to patients – learning from a recent study on treatment-disparities in Europe.

Speaker: Anil Mehta
Download/Play: English
Duration: 17 min 46 sec

Questions and Answers
Download/Play: English
Duration: 14 min 15 sec

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How to capitalize on the cooperation between care-centres and patient groups

Speaker: Karleen De Rijcke
Download/Play: English
Duration: 18 min 57 sec

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Pro and Con session and debate: Transparency: Should CF-care centres "open their books" and publish treatment outcomes?

Pro Session
Speaker: Erik Wendel
Download/Play: English
Duration: 19 min 21 sec

Con Session
Speaker: Paul Wenzlaff
Download/Play: English
Duration: 28 min 24 sec

Pro and Con Debate
Download/Play: English
Duration: 26 min 40 sec

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Reaching "difficult" patients: Experiences from a German intervention project.

Speakers: Jochen Mainz and Corinna Moos-Thiele
Download/Play: English
Duration: 22 min 5 sec

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Benchmarking to foster continuous quality improvement: how to start and how to use?

Speaker: Michael Boyle
Download/Play: English
Duration: 25 min 47 sec

Questions and Answers
Download/Play: English
Duration: 7 min 55 sec

 

June 18-19, 2010

Cystic Fibrosis Lay Conference
Valencia, Spain
Organized by the Spanish Cystic Fibrosis Federation

Opening conference

"Conclusions of the 33rd CF European Conference"
Speaker: Stuart Elborn, President of the European Society (ECFS)
Download/Play: English - Spanish || Slides: PowerPoint presentation
Duration: 17 min

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Conference 1

Presented by Tomás Castillo-Arenal

"Recommended quality standards for Spanish cystic fibrosis units"
Speaker: Dr. Carlos Vázquez-Cordero
Download/Play: English - Spanish
Duration: 53 min

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Workshop 1

Presented by Antonio T. Ríos-Tomás.

"Physical therapy in Cystic Fibrosis"
Speaker: Dr. Jean Chevalier
Download/Play: English - Spanish
Duration: 1 hr 45 min

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Table 1. “Sexuality and fertility”

Moderator: Alejandro Dueñas-Celorio

Presentation of the manual “Lets talk about sex”.
Speaker: Dr. Carmen López-Sosa
Download/Play: English - Spanish
Duration: 19 min

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Table 1. “Sexuality and fertility”

Female and male fertility in Cystic Fibrosis
Speaker: Dra. Irene Peregrín-Álvarez
Download/Play: English - Spanish
Duration: 23 min

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Table 1. “Sexuality and fertility”

Personal Experiences
Speaker: Various
Download/Play: English - Spanish
Duration: 25 min

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Table 2. “Participation and social rights”

The World of Associations
Speaker: Marta Cano
Download/Play: English - Spanish
Duration: 57 min

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Table 2. “Participation and social rights”

Participating in community; study and work.
Speaker: Inmaculada Salas-Trejo
Download/Play: English - Spanish
Duration: 18 min

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Table 2. “Participation and social rights”

Access to the rights of persons with disabilities
Speaker: Encarnación Blanco-Egido
Download/Play: English - Spanish
Duration: 44 min

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Table 2. “Participation and social rights”

Parents Discussion
Speaker: Various
Download/Play: English - Spanish
Duration: 20 min

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Workshop 2

Improving our habits
Speaker: María Garriga-García (Nutritionist)
Download/Play: English - Spanish
Duration: 20 min

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Workshop 2

Improving our habits
Speaker: Miguel Mayans (Physical trainer)
Download/Play: English - Spanish
Duration: 26 min

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Workshop 2

Improving our habits - Questions
Speaker: Various
Download/Play: English - Spanish
Duration: 6 min

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Workshop 3

Life before and after transplantation
Speakers: Susana López (Psychologist) and Laura Esteban (Social Worker).
Download/Play: Spanish
Duration: 57 min

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Table 3: Research in CF

“Pablo Motos” Research Grants
Speaker: Dr. Amparo Escribano-Montaner
Download/Play: English - Spanish
Duration: 24 min

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Table 3: Research in CF

Communication about DHA
Speaker: Dr. Héctor Escobar-Castro
Download/Play: English - Spanish
Duration: 25 min

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Conference 2

Why should hypertonic saline solution be used in Cystic Fibrosis?
Speaker: Dr. Adelaida Lamas
Download/Play: English - Spanish
Duration: 38 min

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Presentación Red Iberoamericana de FQ

Speaker: Antonio Ríos
Download/Play: English - Spanish
Duration: 9 min

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Closing ceremony

Speakers: Tomás Castillo-Arenal, Karleen De Rijcke, Mitch Messer
Download/Play: English - Spanish
Duration: 31 min