PALESTINE

We Deserve to live

Farah Society for Cystic Fibrosis is a charitable, non profit society which was established in September, 2010. It was launched by families of CF patient and other supporters whose only concern was to be the voice of CF patient’s expressing their hopes and sufferings mainly the CF children.

Cystic Fibrosis is a genetically inherited disease which affects only if a patient inherits it from his both parents. This disease causes secretion glands to excrete sticky vicious abnormal secretion and the sweat glands excrete highly concentrated salt sweat, which causes damage to lungs, digestive system and pancreas. There is no cure for this disease, but every patient must go through regular daily therapy, take drugs and supplement, and do inhalation and exercising in order to have a better quality of life.

Mission: Improve the quietly of life for CF children from all aspect especially the medical aspect

Aims:

1. Structure a specialized center to take care of CF patient.

2. Establish database that will keep track of all children and families affected by CF

3. Ensure the availability of medications, nebulizer and breathing equipment.

4. Providing psychosocial support for CF patients especially children and their families

5. Providing educational programs aimed at improving awareness among CF patients in order to live effectively with their condition.

6. Raising the general awareness of the nature of CF disease among the Palestinian community and medical teams.

7. Create a standard guidelines for the screening, diagnosis and treatment of CF in Palestine

Board Name

Ata A-Zaitari – President

Manar Jaber – Vice President

Amjad Amro – SECRETER

Rawda Al-Hasasneh - SECRETERY TREASURY

Ala Abu Faraha

Dr. Mohammad Abu-Youef

Nisreen Halyaqah

Nisreen Al-Sarahneh

Dr. Hijazi Abu-Mizar

Dr. Abed-AL-Razak Abu-Mialeh

Ra’ad Karaki