E-Newsletter

Inside CFW E-NEWSLETTER:

A message from CFW President Mitch Messer

65 Roses Day of CF Australia

Taking Steps to cure CF

A success story from CF Macedonia

Medical Panel Live Webcast from CF Canada

CF Training on National Television in Moldova

Spotlight on CFW supporter, Sweden Lions Club

Inside CFW

CFW Newsletter
Podcasts
CFW Member Associations
Conferences
CF Forum
Blog
CF Nurses
CF Europe
IPG/CF

CF news around the world

Canadian kid uses supercomputing to cure cystic fibrosis
A Canadian teenager has scooped a CAN$5,000 prize and deserved glory after successfully wielding the power of a scientific supercomputing network to develop a mix of drugs which could be used to fight cystic fibrosis.

Healthy habits: Exercise, treatments help teen with CF
A typical day for Emma D'Agostino includes breathing treatments in the morning and at night and exercise through an Irish dance class or a bike ride.

Glendora woman fights for cure to cystic fibrosis to help her triplets
"We are hopefully so close to a cure and each dollar really makes a difference," said the Glendora resident, who campaigns for the Cystic Fibrosis Foundation.

Hypertonic saline does not provide additional benefit for respiratory distress
Recent studies have suggested that hypertonic saline may improve length of stay in hospitalized infants, but effects on respiratory distress scores have been mixed, and few studies evaluate use in the emergency department," Wu said.

New bacteria strain hits cystic fibrosis sufferers
"It's causing a lot of heartache for a lot of people," said Kelly Sheppard, a patient in Carbonear, Nfld.

GREETINGS FROM CFW PRESIDENT, MITCH MESSER

A CF adult in Macedonia who needs inhalation antibiotics, a child with CF in a Jordanian village dying of malnourishment because his mother gives enzymes 30 minutes before each meal as the local Dr. prescribed, a young mother with a CF baby and millions of questions, an aspiring CF researcher in Europe.

They are all connected by one common thread: YOU.

The goal of all our members and CFW's work is to help people living with CF live longer healthier lives and one day, find a cure. And that work, from Asia to South America, from New Delhi to here in Boston, is powered by the collective support of hundreds of individuals -- including you.

Those of us who work to help people born with CF take great inspiration from that support -- but it's time to make your role more visible. Tell the world you stand with CF Worldwide in our mission to improve lives of people with CF around the world by finding solutions to spread education and information and creating a platform for the exchange of data, research and treatment advancements.

Part of what makes CF Worldwide exceptional is our refusal to wait when we see an opportunity to aid people with CF. You have that opportunity right now, so please, act now and spread the word.

Sincerely,
Mitch Messer
President CF Worldwide

May was CF awareness month. See what has happened around the world: Great Strides: Taking steps to cure CF is the CFF's largest national fundraising event. Every year across Canada, friends, family and co-workers of people with participate in Great Strides. To read more about CF Canada's largest national fundraising event, click here. 65 Roses Day is the national awareness and fundraising day for CF Australia and falls on Friday 27 May 2011. To find out more click here.

A success story from CF Macedonia Minister Bujar Osmani from the Ministry of Health and the Director of the Health Insurance Fund of Macedonia visited the University Pediatrician Clinic, where there was a meeting with the directors of the clinic and the representatives of the Cystic Fibrosis (CF) Association. During the meeting, the directors and representatives presented news about the improvements in CF treatment in the country. To read more, click here. Cystic Fibrosis Macedonia

Medical Panel Live Webcast from CF Canada: "Cystic Fibrosis Bugs: the good, the bad and the ugly". Medical Panel Live Webcast "Cystic Fibrosis Bugs: the good, the bad and the ugly" is available for viewing. Learn about current research on CF bugs, new therapies to fight infections, and infection control strategies. To see the webcast, click here. CF Training on National Television of Moldova The last week of May 2011 a group of health professionals from France and Germany visited Moldova for a CF training. Birgit Dembski, CFE secretary, represented CF Europe and the German CF Association who helped to realize this valuable project. To see the video, visit here.

Sweden Lions Club Int. supports CFW projects in 2011 The Lions of Sweden with its 515 clubs and around 13,000 members collect approximately 3 million Euros in fundraising annually. To find out more, please visit here.