Current Events: Please visit www.cfri.org

CF Care Fund
The CF Care Fund is a new charity that works with doctors and other health professionals to assist CF patients whose financial needs prevent them from obtaining the care they need. Our ultimate mission is to help every CF patient receive optimum care, regardless of the patient's age, income levelor place of residence.

Founded in 2005, we are devoting our early years to working in partnership with several CF centers on the East Coast of the United States; our goal is to develop a model for serving patients that we can expand worldwide.

We are currently seeking photos of CF patients for our new website, and would especially appreciate a cross section of race, age and gender. If you would like to share your photo, please log onto www.cfcarefund.org and follow the link entitled "share photos." Please contact Ellen Arian for more information: ellen18@verizon.net
http://www.cfcarefund.org
Cystic Fibrosis Medicine
Cystic Fibrosis Medicine contains a large collection of articles on cystic fibrosis
as well as cf related links, two forums, a chat room and a drug database.
http://www.cysticfibrosismedicine.com/

DailyStrength
A new online support group called DailyStrength could be of considerable interest to people with CF. It offers help and support for over 500 conditions ranging from brain cancer to parenting a toddler and everything in between. The CF "community" is listed right in the middle of the home page. DailyStrength support communities are anonymous and free. They offer safe and secure forums for people who share a health issue or life challenge and enable people to find and support each other. There are helpful medical advisors on the site who answer members' health-related questions and their treatments section is an amazing resource for finding people who are using a treatment to ask for feedback of their experience.
http://www.dailystrength.org/

European Cystic Fibrosis Society
The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis.
http://www.ecfs.eu/

Fibrosicisticaitalia.it
Sito dedicato alla Fibrosi Cistica con il primo Forum italiano dove genitori e pazienti si incontrano dall'anno 2000.
http://www.fibrosicisticaitalia.it/


Japan CF Network
Contact Person: Tomoaki Adachi, Ph.D.
Title: Manager of public relations
Email: adachi@mgu.ac.jp
Address: Department of Developmental and Clinical Studies, Miyagi Gakuin Women's University, 9-1-1, Sakuragaoka, Aobaku, Sendai 981-8557, Japan
Tel: +81-22-277-6194
Fax: +81-22-277-6195
Mission Statement: Because of the extremely low incidence of cystic fibrosis in our country, we have not had a chance to meet each other. We would like to try to improve the quality of medical care of CF and advance the well-being of the patients and their families through activities of our association.
http://www8.plala.or.jp/JCFN/

Janka Penther's Blog
Read about the travels of an adventurous 23-year-old German CF girl.
This time, she will got to Worcester, South Africa, where she will do some voluntary work for three months.
http://jankasjourney.blogspot.com/

Jerry Cahill's CF Podcast
http://www.jerrycahill.com/

Norma Kennedy Plourde's Site
Cystic Fibrosis Information, with over 2,000 links, a very good resource for CF information on the internet.
http://www3.nbnet.nb.ca/normap/CF.htm

United States Adult Cystic Fibrosis Association
USACFA was formed to provide a source of information and education for adults who have CF - regarding the basis, nature and progression of CF, the latest treatments and research to fight CF, and to assist in the psycho-social aspects of coping with CF on a day-to-day basis. USACFA provides a network and a forum for communication among adults who have CF, their families and medical professionals.
http://www.usacfa.org


Search Engines
Google
YoYsearch - a web portal with ten types of search