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Cystic Fibrosis Conferences
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CF Worldwide Middle East Conference

Riyadh, Saudi Arabia


5-7 December 2011



King Faisal Specialist Hospital & Research Centre
Post Graduate Auditorium

General Information
Message from the Chairman
Executive Committee
International Speakers
Local Speakers

Sponsorship Opportunities
Registration Form

Scientific Program
Workshop Program

  Download the Scientific and Workshop Programs (PDF)

General Information

Topics: CF in the Middle East
Download the poster (August 2011):
Poster
• CF standard of care
• CFTR and cell biology
• CF Bone and liver disease
• CF Asthma, and sinusitis
• CF Pulmonary hypertension
• New challenges in CF infection
• Late Braking science in CF Therapy
• CF Nutritional rehabilitation
• CF air way clearance techniques
• CF lung transplantation
• CF Psychosocial Issues
• CF Epidemiology
• CF Neonatal screening
• CF Adolescent and Adult Cf care
Workshop:
CF Physiotherapy: State of the Art Challenges in CF Nutrition
Target Audience:
All health professionals that are involved in the care of cystic fibrosis patient:
Physicians, Scientist,Nurses, allied Health Professionals, Administrators, Epidemiologists, Researchers,Patient's families and lay persons.
FOR FURTHER INFORMATION & REGISTRATION

MBC 58 Department of Pediatrics,
King Faisal Specialist Hospital & Research Centre
P.O. Box 3354 Riyadh 11211 Kingdom of Saudi Arabia
Tel.Nos.: +966-1-4427761 Fax No.: +966-4427784 /4647272
exts.31960 or 31966/ 27763/39011
E-mail: mreyes@kfshrc.edu.sa

http://www.cfksa.org

MESSAGE FROM THE CHAIRMAN

On behalf of the Organizing Committee, I am honored to welcome you all to the
“1st CYSTIC FIBROSIS WORLDWIDE MIDDLE EAST CONFERENCE” which will be held for the first time in Saudi Arabia on 5-7 December 2011 (10-12 Muharram 1433) in the Postgraduate Center of King Faisal Specialist Hospital & Research Centre, Riyadh, Saudi Arabia.

The scientific program has been carefully designed to include topics of special interest to all medical health providers for cystic fibrosis by outstanding authorities in the scientific sessions. Our aim is to raise the awareness of our healthcare providers regarding this common but fatal disease, which is commonly missed and overlooked by many physicians.

The scientific program also included 4 workshops that are aimed to fulfill the needs of different specialties related to CF (Physicians, Geneticists, Scientists, Researchers, Respiratory therapists, Nurses and Nutritionists).

The program will also include live transmission of CF achievers from all over the world to tell their success of fighting this disease and be productive and achievers in their field and will be also transmitted to many countries in the Middle East and Africa.

I would like to express my sincere appreciation to all our participants, our local and international speakers, as well as to our sponsors who have actively contributed to the success of this important endeavor.

Again, I wish everyone a fruitful and fulfilling time during our Conference. Your active participation will give an important boost to the success of this activity. We warmly welcome your evaluation and comments during and at the end of the meeting.

Sincerely,

Hanaa Banjar, MD, FRCPC
Consultant and Head, Section of Pulmonology
Chairman, Organizing Committee
Cystic Fibrosis (CF) World Wide Middle East Conference

EXECUTIVE COMMITTEE

Dr. Hanaa Banjar
Chairman Organizing Committee for Cystic Fibrosis Middle East Conference
Consultant / Head, Section of Pulmonology
Department of Pediatrics
King Faisal Specialist Hospital & Research Center (KFSH&RC)
Riyadh, Saudi Arabia

Christine Noke
Executive Director
CYSTIC FIBROSIS WORLDWIDE
Worcester, United States

Dr Harry Heijerman
Consultant
Adult Pulmonology
Department of Medicine
Director of The Hague Teaching Hospital
Medical Advisor to the WHO Human Genetics Program

Dr Ian Balfour-Lynn
Consultant
Paediatric Respiratory Medicine
Royal Brompton Hospital
Sydney Street, London

INTERNATIONAL SPEAKERS

name
Mr. Mitch Messer
President CF Worldwide
Director at Quality in Practice Pty Ltd
Director at Australian General Practice Accreditation Limited
Director at Thinking Beyond Pty Ltd
Perth, Western Australia

name
Christine Noke
Executive Director
CYSTIC FIBROSIS WORLDWIDE
Worcester, United States

name
Dr Ian Balfour-Lynn
Consultant
Paediatric Respiratory Medicine
Royal Brompton Hospital
Sydney Street, London

name
Dr Harry Heijerman
Consultant
Adult Pulmonology
Department of Medicine
Director of The Hague Teaching Hospital
Medical Advisor to the WHO Human Genetics Program

 

name
Dr Anne Munck
Director
Pediatric Gastroenterology
Director of Pediatric CF Center
Paris member of ECFS
Executive Board of Directors

 

name
Ms. Sue Wolfe
Chief Paediatric Dietitian
Regional Paediatric Cystic Fibrosis Unit
Ward 25, Clarendon Wing, Leed General Infirmary LS2 9NS
Appleton Roebuck, York, Yo23 7dq, England

name
Dr. Susan Madge
Consultant Nurse
Department of Nursing
Royal Brompton Hospital
UK

name
Ms. Louise Lannefors
Physiotherapist,
Lund, Sweden.

   
LOCAL SPEAKERS

Dr. Hanaa Banjar, FRCPC
Consultant and Head, Section of Pulmonology
Department of Pediatrics
Chairman Organizing Committee for Cystic Fibrosis Middle East Conference
KFSH-RC
Riyadh, Saudi Arabia

Dr. Ibrahim Saad Al Mogarri
Consultant
Section of Pulmonology
Department of Pediatrics
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Khalid Awartani
Consultant
Reproductive Endocrinology & Infertility 
Director, Reproductive Endocrinology and Infertility Fellowship Program 
Department of Obstetrics & Gynecology Section
KFSH-RC
Riyadh, Saudi Arabia

Dr. Mohammed Al-Sebayel
Consultant, Liver Transplant Surgeon
Medical Director, Liver Transplantation & Hepatobiliary
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Khaled  Manae Al-Kattan
Consultant, Thoracic Surgery
Department of Surgery
Dean,  Alfaisal University
KFSH-RC
Riyadh, Saudi Arabia

Dr. Mohd Banemai
Consultant/Section Head
Section of Gastroenterology
Department of Pediatrics
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Abebe Dejene
Consultant, PSYCHIATRY
Department of MENTAL HEALTH
KFSH-RC
Riyadh, Saudi Arabia

Dr. Mohammed Al-Hamed
Saudi Diagnostic Laboratory, Research Center
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Serdar Coskun
Section Head
Assisted Reproductive Technology Department of  Pathology & Laboratory Medicine
KFSH-RC
Riyadh, Saudi Arabia

Dr. Wafaa Qubbaj
Clinical Scientist
Assisted Reproductive Technology
Department of Pathology & Lab. Medicine
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Michael Steven Timms
Head and Consultant
Head and Neck Surgery
KFSH-RC
Riyadh, Saudi Arabia

Dr. Tareq Mohammed Al-Ayed
Consultant, Pediatric Intensive Care
Coordinator, Pediatric Health Outreach
Department of Pediatrics
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Imran Nizami
Consultant, Adult Pulmonary Medicine
Department of Medicine
King Faisal Specialist Hospital - Riyadh

Dr. Afaf Al-Saghier
Consultant, Pediatric Endocrinology/Diabetics
Department of Pediatrics
KFSH-RC
Riyadh, Saudi Arabia

   

 Dr Talal Al Magahmsi
Consultant
Pediatric Pulmonology
KFSH-RC
Jeddah, Saudi Arabia

 Dr. Waleed Saleh
Consultant, Thoracic Surgery
Department of  Surgery
KFSH-RC
Riyadh, Saudi Arabia

   

Dr. Imran Yacoob Nizami
 Consultant 
Pulmonary Medicine
Department of Medicine  
KFSH-RC
Riyadh, Saudi Arabia

Mr. Mohammad Al Buqami
Respiratory care services
KFSH-RC
Riyadh, Saudi Arabia

   

Ms. Zainab  Al-Ghamdi
Clinical Dietitian I
KFSH-RC
Riyadh, Saudi Arabia

 
SCIENTIFIC PROGRAM
Day 1

05 Dec 2011 (Monday)

TOPICS

PRESENTER

07:00 - 08:15

REGISTRATION / BREAKFAST

08:15 - 08:30

Welcome address

Dr. Hanaa Banjar/ Chairman of Organizing Committee, KFSH-RC

1ST SESSION  

08:30 - 09:00

Cystic Fibrosis :  From Gene to Disease

Dr. Harry Heijerman

09:00 - 09:30

Cystic Fibrosis  in Saudi Arabia

Dr. Hanaa Banjar

DISCUSSION

09:45 - 10:30

Opening Ceremony

10:30 - 10:45

COFFEE BREAK

2ND SESSION

10:45 -11:05

Early Lung Disease :  Diagnosis and Monitoring

Dr. Ian Balfour-Lynn

 

11:05 - 11:30

Treatment of Pulmonary Exacerbations

Dr. Harry Heijerman

 

11:30 - 12:00

Prevention and Treatment of Chronic  Pseudomonas aeruginosa Infection

Dr Harry Heijerman

 

DISCUSSION

12:15 - 13:30

L U N C H   B R E A K

3RD SESSION

13:30 - 14:00

Diagnosis and Treatment of Pancreatic Insufficiency (PI)

Dr. Anne Munck

14:00 - 14:20

Distal Intestinal Obstruction Syndrome (DIOS) and Other Gastro-Intestinal Manifestations / Liver Disease

Dr. Anne Munck

14:20 - 14:50

Nutrition from Infancy to Adulthood

Ms. Sue Wolfe

DISCUSSIONS

15:00 - 15:15

COFFEE BREAK

4th SESSION

15:15 - 15:35

European CF Registry

Tele Medicine

15:35 - 15:50

European Standards of Care

Dr. Su Madge

15:50 - 16:50

Six (6) Abstract Presentation(10 min. each)
Dr. Asma Al Nuaim / Dr. Maha Al Dabbagh / Dr Ibrahim Janahi

DISCUSSION

Day 2

06 Dec 2011
(Tuesday)

 TOPICS

 PRESENTER

1st  SESSION

08:00 - 08:30

Cystic Fibrosis complications (Asthma ABPA, Haemoptysis, Pneumothorax, Pulmonary Hypertension)

 

Dr. Ian Balfour-Lynn

08:30 - 08:50

Cystic Fibrosis Sinusitis / Nasal Polyposis

Dr. Michael Steven Timms

08:50 - 09:10

End stage Lung Disease (including noninvasive ventilation)

Dr. Tariq Al-Ayed

09:10 - 09:30

Inhaled Therapies (not antibiotics)

Dr. Harry Heijerman

09:30 - 10:00

New Therapies

Dr. Ian Balfour-Lynn

DISCUSSION

10:15 - 10:30

COFFEE BREAK

2ND SESSION

10:30 - 11:00

Cystic Fibrosis Related Diabetes

Dr. Harry Heijerman

11:00 - 11:20

Cystic Fibrosis Relates Osteoporosis

Dr. Ibrahim Al Mogarri

11:20 - 11:40

Result of PGD/IVF at KFSHRC

Dr. Khalid Awartani

11:40 - 12:00

Neonatal Screening (Pros and Cons)

Dr. Ian Balfour-Lynn

DISCUSSION

12:00 - 13:30

L U N C H   B R E A K

3rd SESSION

13:30 - 14:30

Six (6) Abstract Presentation (10 min. each)

DISCUSSION

15:00 - 15:15

C O F F E E   B R E A K

4th SESSION

15:15 - 15:35

Adult care of Cystic Fibrosis

Imran Nizami

15:35 - 15:55

surgery and lung transplantation for CF

Dr. Khalid Kattan

15:55 - 16:15

Cystic Fibrosis  Liver Transplantation

Dr. Mohammed Al-Sebayel

DISCUSSION

16:15 - 16:30

DISTRIBUTION OF PRIZES

DAY 3
Parallel to Arabic Cystic Fibrosis Awareness Program

1st SESSION

07 Dec 2011
(Wednesday)

 TOPIC

 PRESENTER

 

10:45- 12:45

Meet CF Achievers from all over the world/ Expert Panel
With live transmission from Australia, Europe and simultaneous Arabic translation

Panel of experts
Open Discussion with the audience

Living with Cystic Fibrosis
Adult with Cystic Fibrosis
Being a Cystic Fibrosis Parent
Mother with Cystic Fibrosis
Fighting Back

 






TBA

12:45 - 13:00

DISCUSSION

Workshop Program
Day 1

05 Dec 2011 (Monday)

TOPICS

PRESENTER

 10:30 - 12:00

 Workshop #1 Cystic Fibrosis Nursing Issues

10:30 - 10:55

Cystic Fibrosis  Nursing - Hygiene and Cross Infection

Dr. Su Madge

10:55 - 11:20

Practical Management of  Indwelling Ports and Gastrostomies

Dr. Su Madge

11:20 - 11:45

Success of NGT/ GT feeding in the Saudi population

Dr Mohd Banemai

11:45 - 12:05

Psychological Management of Patients with CF End of Life Stage

Dr Abebe Dejene

Discussion

 13:30 - 15:00

Workshop #2 State of the Art CFTR Technology

13:30 - 13:50

Detection of Mutations causing Cystic Fibrosis.

Dr. Mohammed Al-Hamed

13:50 - 14:10

CFTR Gene Modifiers and Polymorphisms

Dr. Mohammed Al-Hamed

14:10 - 14:30

State of the Art Assisted Reproductive Technology Literature Review

Dr Serdar Coskun

14:30 -14:50

Pre-implantation Genetic Haplotyping (PGH): KFSH&RC Experience

Wafaa Qubbaj

Discussion

Day 2

06 Dec 2011
(Tuesday)

TOPIC

 PRESENTER

10:30 - 12:00

 Workshop #3 Physiotherapy State of the Art

 

 

Physiotherapy/ Modern Physiotherapy
IPG - CF
Inhalation Therapy
Airway Clearance Techniques
Physical Exercise
Physiotherapy; Why do patients need therapy daily?
What is the best to do at home?
How to take care of your equipment at home.

 

 

Ms. Louise Lannefors

Discussion

 13:30 - 15:00

Workshop #4 Challenges in CF Nutrition

13:30 - 13:50

Nutrition & Enzymes: that’s where it starts

Ms. Sue Wolfe

13:50 - 14:10

Nasogastric and Gastrostomy feeding in patients with CF

Ms. Sue Wolfe

14:10 - 14:30

Nutritional Management of Patients with CF related Diabetes

Ms. Sue Wolfe

14:30 - 14:50

Management of CF Bone Disease

Dr Afaf Al-Saghier

Discussion

Day 3

07 Dec 2011
(Wednesday)

TOPIC

 PRESENTER

1st SESSION

O8:30 - 09:00

Welcome Address

Dr. Hanaa Banjar

09:00-09:20

From gene to disease

Dr. Hanaa Banjar

09:20 - 09:35

CF  Nutrition from Infancy to Adulthood

Zainab Al-Ghamdi

Discussion

2nd SESSION

09:45 - 09:55

Cystic Fibrosis Lung Transplantation

Dr. Waleed Saleh

09:55 - 10:05

Pre-implantation Genetic Diagnosis and  In- vitro Fertilization
( PGD/ IVF)

Dr. Khalid Awartani

10:05 - 10:15

New therapies

Dr Hanaa Banjar

Discussion

10:30 - 10:45

Coffee break

3rd SESSION

 

 

10:45 - 12:45

Meet CF Achievers from all over the world/ Expert Panel
With live transmission from Australia, Europe and simultaneous Arabic translation

Panel of experts
Open Discussion with the audience

 

Living with Cystic Fibrosis
Adult with Cystic Fibrosis
Being a Cystic Fibrosis Parent
Mother with Cystic Fibrosis
Fighting Back

 

 

 

 

TBA
TBA
TBA
TBA

DISCUSSION

13:00 - 14:00

Lunch and Prayers

 

14:00 - 15:30

Chest Physiotherapy Workshop
Postural Drainage
PEP mask/ Flutter
Chest Vest

Mohammad Al-Bugami
Dr Sami Al-Haider
Dr Talal Al-Magahmsi

15:30 - 16:00

Distribution of Prizes

 

 

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