The European Cystic Fibrosis Society (ECFS)
European Cystic Fibrosis Clinical Trial Network
European CF patient registry
The ECFS is a Society of European and international experts in all fields of CF research.
"The European Cystic Fibrosis Clinical Trial Network is a network of CF centers, aiming at intensifying clinical research in the area of cystic fibrosis and to bring new medicines to the patients as quickly as possible."
The "ECFSPR" is a registry holding data on CF patients throughout the European Union and some of the neighbouring countries over an extended period of time. Goals of the Registry are to increase the knowledge on CF, to determine clinical effectiveness of health care, for comparing and improving standards of care for CF patients, to support health care service planning and for research purposes.
The IMPACTT project will complete a clinical phase III trial, to demonstrate the critical preventive and therapeutic effects of a pioneering intervention therapy (based on the avian polyclonal Anti-Pseudomonas IgY formulation) for chronic infection of Pseudomonas aeruginosa in CF patients. To this, a parallel objective is to explore ways of meaningfully involving patients and family members into clinical CF research. The IMPACTT Project started on January 1st 2011 and is a collaboration between ten partners from six European countries, supported by the European Union Seventh Framework Programme.