Cystic Fibrosis Europe
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In den Dauen 6,
D- 53117 Bonn, Germany
Tel.: 0049 / 228 / 98780-31
Fax: 0049 / 228 / 98780-77
Email:  |
| Recommendations to avoid cross infections |
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Cystic Fibrosis Europe
 WHAT IS CYSTIC FIBROSIS EUROPE?
Cystic Fibrosis Europe is the federation of national European CF Associations and a subdivision of Cystic Fibrosis Worldwide.
CFE represents persons with CF and their families in Europe. It was founded at the European CF Conference in Belfast in 2003. So far 25 national CF Associations are member of CF Europe.
CFE works in close cooperation with other national, European and worldwide organizations, groups and institutions of similar aims and objectives.
The main objectives of CF Europe are:
• to improve the quality of life of Cystic Fibrosis patients and their families in Europe
• to represent and defend the interests of CF patients and their families in all walks of life
• to raise public awareness and understanding of the concerns of the CF patients and their families
• to promote appropriate medical care for Cystic Fibrosis patients everywhere in Europe
In order to realise its objectives, CF Europe looks for funding via sponsoring, donations and subsidies.
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Latest Articles
April 16, 2010 - Research  Mukoviszidose e.V., the German CF association, finances Scientific Projects in the Field of Cystic Fibrosis (CF) - Call 2010
Mukoviszidose e.V, provides funding for projects which investigate the implementation of findings from basic CF-related research in clinical applications and vice-versa (translational research). In this way, Mukoviszidose e.V. aims to bridge the gap to a cystic fibrosis therapy for tomorrow (prevention, diagnosis, therapy), in which basic research scientists and clinical officers from all disciplines cooperate in developing new methods for hospital applications and observations of patient reactions are reflected in laboratory work. Support is given in the following fields according to a three-tier model: Special focus funding in special subject areas, start-up support and financial support for young academics. Deadline for handing in initial applications is 30. June 2010
Read the full article for further information or visit their website www.cf-germany.org (Support of Cf-related research).
March 5, 2010 - Meetings 4th European CF Young Investigator Meeting
The 4th European CF Young Investigator Meeting will take place in Lille (France) from the 24th to the 27th of August 2010. This scientific meeting is organized by the European cystic fibrosis patients’ organizations together with the European Cystic Fibrosis Society.
March 5, 2010 - Campaigns IX National Week of Cystic Fibrosis
The situation of adult CF patients and the challenges lying ahead of the health care system in Poland in order to provide them with a complex health care – these are the leading topics of the IX National Week of Cystic Fibrosis opening on February, 22nd.
October 19, 2009 - Meetings 3rd European CF Young Investigator's Meeting (EYIM)
The 3rd European CF Young Investigator Meeting was held in Lille (France) from 25 – 28 August 2009. For this 2009 edition CFE invited all member associations from across Europe to send out a call for abstracts to their young investigator’s resulting in candidates from 12 countries.
February 26, 2009 - Campaigns 8th Polish CF week - Rare Disease Day February 2009
This is already new edition of polish social campaign, which aim is to build awareness of Cystic Fibrosis – 8th Polish Nationwide Week of Cystic Fibrosis. The theme of the action in this year is “Cystic Fibrosis. Know more, treat better”. The campaign is patronaged by Ministry of Health. It is organized by Foundation for Help Families and Suffers for Cystic Fibrosis MATIO ( Polish CF Associaction MATIO) as regular, annual educational program concerning cystic fibrosis and genetic diseases.
January 14, 2009 - Events 3rd European Cystic Fibrosis Young Investigator Meeting
The 3rd European Cystic Fibrosis Young Investigator Meeting will take place in Lille (France) from 25 to 28 August 2009. This scientific meeting is organized by the European CF patients’ organizations together with ECFS, the European Cystic Fibrosis Society, in partnership with Chiesi and the Faculty of Medicine of Lille. It aims at fostering interactions between young scientists in order to create a long-term collaborative European network of CF investigators. The meeting will cover all CF research fields, considering basic research and clinical research.
February 1, 2008 - Campaigns 7th Polish Social Campaign
Information about Social Campaign
7th POLISH CYSTIC FIBROSIS WEEK
(25.02-02.03.2008)
November 1, 2007 - Events 2nd EUROPEAN CYSTIC FIBROSIS AWARENESS DAY
On 21 November 2007 Cystic Fibrosis Europe, a federation representing 30.000 patients in 30 European countries, organized its 2d “European CF Awareness Day”. Cystic Fibrosis (CF or mucoviscidosis) is the most frequent life threatening genetic disease in Europe. Sticky mucus blocks the respiration and digestion. Without an expensive and time consuming treatment children with CF suffocate! Although patients who have access to appropriate care can become 40 years and older, children who live in countries where the CF care is less developed or available still die at a very young age!
November 30, 2006 - Events Towards Equal Access to Appropriate Care For All CF Patients in Europe
Cystic Fibrosis (CF or Mucoviscidose) is the most frequent life threatening genetic disease in Europe. In some countries the median age at death of people with Cystic Fibrosis is more then 35 years, in other countries the majority of children die before their 5th birthday! Guidelines for best standards of care were developed to ensure appropriate treatment in Europe. In clinics where these guidelines are followed and appropriate care is provided life expectancy is now more then 40 years old. Most children have few symptoms and serious problems can be delayed until adulthood. In regions where the disease is not yet well known and access to appropriate care is poor, the life expectancy and quality of life are still very low.
June 14, 2006 - Annual Reports CFE Annual Report June 2005 - June 2006
In January 2006, Karleen visited the Polish Society for CF and met the Board, visited the CF clinic in Rabka and talked to the media and politicians about better access to care for CF patients in Poland. A full report of this visit can be downloaded from the website or sent on demand.
June 13, 2006 - Events CF Europe organizes the first European Cystic Fibrosis Awareness Day
The goal of this CF Day will be to raise public awareness and political interest for the problems of persons confronted with CF on a European level. We want to promote optimal standards of care in all countries of the European Union. The average life expectancy for people with CF who have access to appropriate CF care is now 40 years. But in some regions a lot of patients die before they reach adolescence or adulthood. Especially the newer EU countries stress the importance of a European CF Day and stimulate us to move forward.
All over Europe awareness campaigns can take place from 17 till 26 November. National CF associations can join the ECFD or just mention it in within the frame of their own activities.
May 11, 2006 - Events First European Cystic Fibrosis Awareness Day - 21 November 2006
MAJOR SUCCESS ALL OVER EUROPE
Better awareness and more support for Cystic Fibrosis patients in Europe
“On the basis of your initiative, this is the first time that patients and parents appear in public in our country in an attempt to acquaint the broader community with this disease.” CF Serbia
January 9, 2006 - Cystic Fibrosis Care Warm Welcome in Frozen Poland
CFE President Karleen de Rijcke brings us a report on her experience in Poland.
The Polish CF association, Polskie Towarzystwo Walki z Mukowiscydoza, invited me to visit Poland in order to share experiences and to see how to improve the care of CF patients in Poland.
The goal of my visit was to generate more support for CF patients by showing health authorities that Polish CF care should be improved and that it could be improved with a modest amount of financial support.
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| DONATIONS WELCOME |
In order to realise its objectives, CF Europe looks for funding via sponsoring, donations and subsidies.
Cystic Fibrosis Europe
Account number:
8 303 900
IBAN:
DE 87 370 20500 000 8303900
BIC-Code:
370 205 00 / BFS WDE 31
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MEMBER ASSOCIATIONS
OF CF EUROPE |
- Albania
- Armenia
- Austria
- Belgium
- Bulgaria
- Croatia
- Czech Republic
- Denmark
- Estonia
- France
- Germany
- Georgia
- Greece
- Hungary
- Ireland
- Israel
- Italy
- Latvia
- Lithuania
- Luxembourg
- FYR Macedonia
- Netherlands
- Norway
- Poland
- Romania
- Russia
- Serbia
- Slovakia
- Slovenia
- Spain
- Sweden
- Switzerland
- Ukraine
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CRETE 2005
Anti Cross-Infection Requirements
Medical Notepaper
