Cystic Fibrosis Worldwide (CFW) and the World Health Organization Human Genetics Department (WHO HGD) have been working in official relations since CFW's inception in 2003. The main priorities of this partnership are having Pancreatic Enzymes listed on the WHO Model List of Essential Medicines, to develop a Global CF Registry and through evaluations of CFW projects, publish a manual on developing CF associations and implementing CF care in developing countries. Cystic Fibrosis Worldwide has formed a committee to work in collaboration with WHO leaders and decisions makers. In 2007 CFW was able to complete the application to put pancreatic enzymes on the WHO Necessary Drug List and now work towards submitting this application in 2008.

• WHO / CFW Publications
• Getting pancreatic enzymes