Cystic Fibrosis Worldwide (CFW) is a non-profit organization located in Massachusetts, USA and Izmir, Turkey. CFW is dedicated to improving quality of life and life expectancy for people living with cystic fibrosis (CF), a genetic life-threatening disease. Since inception in 2002, CFW has used a variety of programs to aid the CF community in the US and throughout the world.
With 67 member countries, CFW’s primary function is to spread information about the disease among scientists, medical professionals, caregivers, patients, and families and to act as a platform for the international exchange of information. In addition, CFW helps member countries, both developed and developing, by providing capacity-building tools in areas of governing, operating, and fundraising. For instance, CFW supports member countries by helping them develop CF Centers and lobbying for government support.
To learn more about our programs visit http://www.cfww.org/programs/
former Chief Executive Officer and Company Secretary, Cystic Fibrosis Australia, Cystic Fibrosis Australian Data Registry Committee, Chairman: Cystic Fibrosis Clinical Directors Meetings, Executive Position on all Australasian Cystic Fibrosis Conference Committee's. Administrator - Australian Cystic Fibrosis Research Trust
Consultant Adult Pulmonology Department of Medicine
Founding member of the European CF Society
Editor of the CF Journal and
Director of the Hague Teaching Hospital - Netherlands
Member - Australian Pharmaceutical Benefits Advisory Committee, President - Cystic Fibrosis Australia,
Trustee - Australian Cystic Fibrosis Research Trust, Chair - Genetic Support Council of WA, Chair -
Australian Institute for Health Policy Studies - Australia
and Latin America Project committee,
Director of the Spanish CF Association, Federación Española de Fibrosis QuÃstica and
member of CF Europe. Spain
Cystic Fibrosis Worldwide Education Team
CF Worldwide Medical Advisors and Education Team
Paediatric Respiratory Medicine
Royal Brompton Hospital, England
Pediatric Gastroenterology
Director of Pediatric CF Center
Paris member of European CF Society
Executive Board of Directors France
Regional Paediatric Cystic Fibrosis Unit
Leeds General Infirmary, England
Alison Morton Bsc (Hons) SRD
Leeds General Infirmary, England
Leeds Adult Cystic Fibrosis Centre
Joint Chair Cystic Fibrosis Interest Group
Committee member of the European Cystic Fibrosis Nutrition Group
Member of the European Cystic Fibrosis Society and a member of the Scientific Planning Committee for the European Cystic Fibrosis Conference
Department of Nursing
Royal Brompton Hospital
United Kingdom
Founding member of the
International Physiotherapy group
for CF (IPGCF)- Sweden
